A little ponder deeper… Day 13,2017


So, this is a bit of a follow up from yesterdays post, and I will try to keep it concise because nobody can be bothered to read my rambles (including me!) , so here goes…

 

This blog is called “Living my life with Crohns” – but actually, maybe I don’t write enough about that. I write about my life, and I have crohns, and the trials and tribulations I face. But I don’t think I have ever written about what it is actually like. And that’s probably because I had never properly thought of it before my therapy session yesterday. And also because, well, it IS my life – its just what I know, and what I deal with everyday, and sometimes I forget that maybe everyone else doesn’t too.  (I know, I used the word AND way too many times, even to start sentances, which normally I hate, but here it is meant to be dramatic, so bear with me 😉 ). And, also, maybe I don’t sit and think about this side of things too much – which is probably a good thing, because it would be depressing and morbid if I did, but perhaps sometimes it is good to say these things.

 

It is SCARY living with Crohns. Maybe not day to day – right now I am in remission, and that generally means that it has a minimal impact on my life (touch wood). But it does mean I have to make quick trips to the bathroom – I refuse to put myself in a situation where I don’t know where one is. It doesn’t have to be a big deal, but wherever I go, I like to know there is a loo nearby! Also, I get very tired quite a lot – not necessarily after doing anything, but just being worn out. Sometimes this is just tiredness,sometimes it is fatigue, and they ARE different things. But generally, crohns is okay right now in my daily life, it just means taking a few tablets for me at the moment, and the odd hospital trip, but daily, it doesn’t impact me much more than that at the moment.

Crohns is scary. Because I have been there. I have been bent over double in pain, throwing up, unable to eat, crying out because I literally cant hold in how much it hurts. I have been unable to walk, and to dress myself after my operation, I have lost a huge amount of weight, I have been very sick. And it is terrifying to know that that came from within me, and that it could happen again. And that although I am doing everything I can to prevent it, and stop it, that ultimately I don’t have a say in that. It just might happen.

And that’s probably the second scariest bit, not just the potential pain that I know comes with it. But the fact that it might happen, but it might not. That it might start tomorrow, or in a year, or 5, or 35. I have no bloody clue. It could be fine and one day not be, and I would have no warning or no knowledge or no control over that happening. I wouldn’t be able to stop it. It may be bad or it may not be, but either way I will have no idea when it is about to happen and how bad it is about to be. And that, subconsciously I think, brings a lot of uncertainty to my life. It is scary that I could get a job, settle in and in 2 years be bought back down to nothing, because there is no way I could carry on with a job in the state that I was previously in, no way at all. I don’t think about that very often, but it is a thought that I have had, and realistically need to have, but that is terrifying.

The way I think of it is a little monster in my body, he may be hibernating now, and he may stay that way forever, but probably not. He will probably wake up again, and I have no control over when that is , or how bad it is, or how long it will last. Nothing. No say. This little creature (  I know it isn’t really, but that’s how it feels. A part of me I have no control over) can take over my life with  no say so from me, and the fact that is is MY body doing it kinda makes it worse, and so frustrating, and scary.

 

So, that is what it is like living with crohns. Or at least partly. It isn’t always like that, and it isn’t always so scary, and I don’t often think of it that way. But that’s realistic, and true. And terrifying.

 

I have now scared myself and need to stop writing before I spiral! Positive thoughts for now, and hope for a long and strong remission.

H x

Gosh, life is confusing. Day 9,2017. 


I didn’t blog over the weekend – one day was because I forgot, another was an active choice, to spend my time enjoying the day rather than writing about it. 

This weekend I went home with my boyfriend to his parents – which was really lovely. They have a beautiful home, in a lovely place, and it’s always like a mini holiday being there. But once again I fought with my boyfriend, which is wearing me, and him, down. I love him very much, and I know he loves me, but we are just going through a clashing phase – and it’s no fun at all. We decided to put moving in together on hold – which I guess is sensible but I’m a little heartbroken over it. I hope that we can get back on track quickly, and move forward with it 🙂 
So today I found out I got through one stage of job application, although decided not to continue as don’t think the job was right for me- but it’s still reassuring. I also did some more applications, but nothing that exciting. I wish that I knew what my future held, because it’s all so unsure and scary right now.

Sometimes I really feel like I’m driven and have something to offer, and others, I can’t understand why people put up with ms. I’m negative, make mistakes, and generally am feeling like a A failure. So, so. Not sure where I was going with that train of thought, but I’m sure I’m not the only one who feels it. I just want cuddles and support and then feel bad for wanting it and being such a draining burden on everyone. Golly. 

Guess the only plan is chin up andfingers  crossed tomorrow goes better. 
Be happy

H X

Interviews done, motivation up. Day 3, 2017


I almost feel like I am writing a ships blog, with the whole “day 3 into the unknown, 2017 thus far…” feel in the title. But I hope that writing the days will help me to keep on track with my “post a day” plan.

I was hoping to upload some photos into this post, to make it a bit less boring – that is something ELSE I need to improve on. Post more, write succinctly, add imagery – ie redo my entire blog writing style, after all, who wants to read these rambles at the best of times, may as well make them pretty!

So, the big dilemma of today is JOBS (can refer to yesterdays post if you wanted to see an original mini-rant on the topic, but feel free to just join in with this one today :P). I am at a crossroads in my career – or maybe the starting block, or a starting block with multiple lanes to run down? Not quite sure which is the correct metaphor, but in essence I have to get a job and start my career and I have no idea which way to turn, or how to do it. Which is stressful. Anyway, today I had a great interview with a “sales and recruitment” recruiter- who focus on getting graduates into these kind of jobs, and YIPPEE they liked me, and have agreed to help me, and I am infact sat by my phone now waiting for them to call to discuss opportunities starting ASAP. Which is great, and exciting, and gives me the potential to earn money, move out, get on with my life. All yay…..

…But. And its quite a bit but (cheeky, not in that way 😉 ) It will mean kind of giving up on the museum thing. I  mean, it wont. I will still keep an eye out for museum stuff, and hope that the new experience and job skills may help in the future. But, I kinda feel like I am failing by not carrying on with the museum stuff alone. By not being strong enough to just say “nope this is what I want, and this is what I am going to do”. But I have done that, for about 3 and a half months now. And that’s a long time to fail, and to have no job and no money. And so I think I might do it. Might take this other job, to give myself experience, and money and move forward. And hope that one day I can get back to the museum stuff. But what if I cant? Am I letting myself down? My family down?  Will people judge me? is this a mistake? Will I hate it? Who even knows. Argh. Its a big weight on my mind, and I am not good at decisions at the best of times!

 

Anyway, crossroads/ wonky starting block/ confused little life path. All must be overcome. At least I remembered to blog, I supposed.

H x

Very close to a tantrum


so. 

I have to quit my job tomorrow. And I know o show focus on the exciting masters that is in my future. And I know I should focus on all the opportunities . But all I can think about is how am I meant to have that awkward conversation? How am I meant to tell them then work my notice? Gulp. Help! 

My colonoscopy just got moved from Tuesday to the week after. I organised lifts, time off work, sorted the diet things. I want to cry. I don’t feel great (I don’t feel bad. I just don’t feel 100%) and I hate the procedure but had psyched myself up for it and planned my weekend accordingly and now it was for nothing! I want it to be done, I want to know the results, I want it to be over. 

I think the stress is contributing to me feeling ill? Or not great. I don’t want to use the word ill or say I’m feeling bad when I’m not really I guess. I’m just not good.

I have my next humira in Sunday and ta already making me feel a bit sick to just think of it. God I hate those things. I hate how childlike and fearful they make me. How j can’t control it!
It’s not fair. I feel scared and a little lonely taking this leap of faith. I wish I had just one thing that was a bit more secure in my life. (Sorry for the dramatic over indulgences of a spoilt child – of course I am lucky in so many ways but sometimes it is hard to see. Which makes me even angrier sometimes – why oh why do I find r so much harder than everyone else to focus on the good?!) 
I am shattered. As per. I spend my life being tired and worrying. I can’t even enjoy weekends because I’m ferrying round between home and my boyfriends and friends, not getting enough time to see any of them properly. 

Please let this period of indecision and change be over soon.

H x