Little life update…


Ciao amigos,

Hope you are all well. Or at least better than me…for now…since I am currently stuck at home with the flu (or something super similar). LAME. I am a little concerned about managing to fight this off, especially with my rubbish immune system (thanks, aza). I am due to go away the start of the second week of February, and really want to make sure that I am feeling better by then, because I know that normally I just drag things out, and continue to feel ill for longer period of time.

 

I am not really sure where this blog is going to go from now on, obviously I will continue to track my crohns journey, but I am not sure I can keep blogging about healing over my breakup, because its just so messy and complicated.

With regards to Crohns – I have a check up appointment on Wednesday, and hopefully that will be helpful, not only to be able to check in with the specialist but also to see if there was anything new spotted in the camera test – which I assume there wont be, or else they would have contacted me earlier. The hospitals have been so unreliable and badly organised recently, I am concerned that they aren’t going to have all my test results, or it wont be a helpful consultation, and in which case I am going to kick off a bit – this appointment should have been March last year but kept being postponed because nobody could get this one test organised, so if by now (the test was about 3 months ago) they haven’t got the results transferred, I will be so so frustrated! I think I an still in remission, I am not feeling great – a combination of stress, work stress and illness; which I think is all a bit much for my poor body, so am glad I have the day off today to rest and try and heal a bit more!

With regards to my break up – its been 9 months – how crazy! Enough time (theoretically) for my body to make and grow an entire functioning human being, but not enough for my heart and head to heal fully – how is that possible!? Life is better, and smoother, and less focussed on him and my out of control feelings around him, and now I can go days without thinking of him, and it just is such a smaller part of my life.  A fleeting thought, a passing memory, but nothing as important as it once was, which in itself feels a small miracle. I have had a bad few days recently, thinking of him and being unrealistic, and I think the fever hasn’t been helping with the vivid, miserable dreams! But I think I need to just look back and acknowledge how far I have come – maybe its taken me longer than most, maybe I haven’t always handled things the right way, but I am moving forward, and that is the main thing. I have been on a few dates, but nothing major, and with nobody special – and I am feeling ready for a boyfriend again, for that intimacy and closenss, I just cant be bothered with dating! I just want to find a best friend first, and have something go from there- which I know is so rare, but it is what happened with him, and it was perfect. I am having to try really hard to keep on top of my brain, and keep quashing these stupid, harmful memories of him.

So I had a few issues with mutual friends of his, and that hasn’t really changed. I have tried a few times to build that friendship back up, but it isn’t happening. For now, I texted them both and just said that I love them, and want to go back to how we were, but that cant happen until I genuinely accept and am okay with their choice to remain such close friends with him, and honestly, I am not there yet. There is no point pretending, and trying to suppress the feelings because they will always be there silently in the corner, so the only thing to do is work through it, and once I am okay with it, the friendship can go back .Ultimately, to be honest I think they are closer with him now, than with me; because he would never have faced the issues I did, he was clearly over me the minute he ended that phone call to dump me- in fact I think he had been over me for a while before that, so for him, it was never a hardship. Whereas I needed to cut every possible aspect of contact with him out my life, because its the only way I could progress to where I am now, and hopefully keep it going. Regardless, I think I am dealing with it the most mature way I can, with everyone knowing where I stand and being honest; but to be honest I think those friendships are gone, hey are lost, and they cant be got back.

I have also made some new friends, and strengthened my friendship with lots of other people, and experienced things in lots of new places. Life is good, but hard, and funny and interesting but difficult and challenging and all these things. Finally, I am back to being able to see more of a balance. Long may it continue.

H x

 

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Happy Christmas!


I can’t believe how fast time has gone recently – and that it is nearly Christmas! HOW?!

I have been really busy recently, trying to make the most of my time at work, and maximising any potential opportunities I have left. At the end of January my maternity cover job ends (the one I love!) which has been two days per week for the last year. Trying not to get too emotional about it (and definitely not succeeding!) so struggling with the sadness that comes with leaving a great job and an even better team. This means that at the end of January I will only be working one day per week in a Volunteer Coordinator role (very cool) and then having a 0 hours contract in my other job, which is…difficult.

My other job has actually given me a lot of hours ( all weekend based, sigh) for January, so at least my pay check shouldn’t suffer TOO much…but I am definitely feeling the stress/ misery / heart break at having to start the job hunt again. ITS TOO SOON I feel like screaming! But, alas, it has to be. The job I am doing that is on 0 hours is frustrating – I like the role and am good at it, I just got given a kinda of promotion ( in title only) to be coordinating the volunteer team there too – meaning more responsibility, recruitment, creating and running training programs, trips, scheduling new training, bringing in new opportunities for current volunteers etc – so much opportunity and flexibility to bring in new initiatives and really revitalise and improve the existing program, and I am SO excited about it. But, they aren’t giving me enough hours to do the work. Leaving me with the dilemma of not doing enough or not doing it well enough, or having to do work unpaid from home. Neither of which is really an option. Its one of those awkward growing-pains type stages- if you get what I mean? I just feel a little in limbo. Almost settled, but also definitely not. Almost stable, but nowhere near. Almost ready to move out and be a grown up, but with no stability I am also not. Its hard. Hard to keep plodding on sometimes when you think you are going forward but then end up just as far back as before.

 

Something I am really struggling with at the moment is to not compare myself to others – either my peers, or my work colleagues, or just some randomer on the train. I feel like I am not doing well enough at work, or I should have a better job, or I should get better paid, or have a boyfriend, or be going on more dates, or have moved out, or be investing in a house, or be going out drinking more, or be hitting the gym and losing weight, or have better eyebrows or WHATEVER the situation is, I just am feeling a lot like I am not good enough. I have some incredible friends and family, and am really trying hard to absorb the mantra, and remind myself, that we aren’t all living in one path -there may be a beginning and an end for everyone, but (cliché as it sounds) the journey between the two really is a rollercoaster, with a million pit stops along the way, which are different for every person. I can even have the exact same goals as the person sat next to me, but I can reach them in my own time, following my own journey along the way. And even typing this makes me want to vomit in my mouth, it so cliché and over-motivational, but it is also true. I can write all this, and know it to be true, but that doesn’t mean I know how to implement that in my daily life. but, I am trying. And I will keep trying.

I want to get to the stage where I am just, happy with myself. With how I look, and how I act, how I am working, how I feel about myself, all of it. And I am sure that I will get there, I hope I will, but I sure as hell am not there yet.

I hope you all have a lovely Christmas and new year, if I don’t get around to posting between now and then (possible)

H x

Little Life update


Hey,

 

so I have definitely lost my blogging mojo for a  while…but I just wanted to update you a little. I am still feeling low, and struggling to get over my heartbreak – but am powering on and doing my best to focus on positive aspects of my job, friendships and family, of which there are many good things for sure.

I have some new job opportunities coming up, about which I am really excited. I think it will help me to move towards some more job security as well as giving me the chance to work in volunteer management and some of the other areas I want to move into. I hope to find out how it will all fit together in the next few weeks, so it is a nerve wracking but exciting time!

Aside from that, absolutely loving my friends, and making more friends through work too which is nice- it means I am getting out more, with a bigger variety of people, and having a nice social life, where I finally am back to feeling more like myself and enjoying socialising without feeling awkward, or ashamed of myself, or like I am not as funny or pretty or clever as the others- which I think I am realising is what I felt 90% of the time when I was with my ex and his friends…an outsider, who constantly had to try to impress people to fit in, and it just shouldn’t be that way, and that constant pressure and knowledge of how they felt about me, eventually was one thing that really got in out way.

My brother is back from Australia, he isn’t very well at the moment so spending a lot of time at home, and I hope he will be feeling better soon! Until then, I am trying to make the most fo the time when he is about, and enjoying having him home again!

I hope to get more into regular posts again, but for now, I have a little lost my love of writing, and feel like more of the same mopey posts isn’t what anyone needs!

 

More to come,

H x

Hey stranger, its been a while…


I don’t really have much to write. And, sadly, I feel like I lost my writing mojo a while back…but this blog used to mean so much to me, a real life line to my feelings and a way for me to process things. But now, now it feels monitored, by my ex. Which I KNOW is stupid, I know that ONCE he bothered to read this, but that was when he cared and when things were different, but the fact that he can read this at anytime, terrifies me. He is the only person in my life I ever trusted enough to tell, so I think that’s why he found it so easy to track me down online – but now I feel I cant write how I used to, as freely as I once did. I wanted to draft a few open letters on here, but I can’t, because, I can’t get my head around it.

 

I am working hard, and enjoying work and doing well. Unfortunately I think one of my contracts is about to end and not be renewed due to budget, but other than the stress of having to restart job hunting, life is good. We have been doing a lot of preperations for mums wedding, enjoying life with a new puppy, and making the most of my newly freed up time to see as many friends as possible.

I need to find a new way to define my relationship with this blog, and with any readers wh are still there. For me, this was never about becoming internet famous, or building a huge following, it was about finding a way to throw my frustrations and fears out into the wind and hoping it would help me process.

On the Crohns front, am booked in for a capsule endoscopy next month, which will be interesting but should help bring up some results about the current position – hopefully showing that it is still in remission!

Hope everyone is well.

H x

A little ponder deeper… Day 13,2017


So, this is a bit of a follow up from yesterdays post, and I will try to keep it concise because nobody can be bothered to read my rambles (including me!) , so here goes…

 

This blog is called “Living my life with Crohns” – but actually, maybe I don’t write enough about that. I write about my life, and I have crohns, and the trials and tribulations I face. But I don’t think I have ever written about what it is actually like. And that’s probably because I had never properly thought of it before my therapy session yesterday. And also because, well, it IS my life – its just what I know, and what I deal with everyday, and sometimes I forget that maybe everyone else doesn’t too.  (I know, I used the word AND way too many times, even to start sentances, which normally I hate, but here it is meant to be dramatic, so bear with me 😉 ). And, also, maybe I don’t sit and think about this side of things too much – which is probably a good thing, because it would be depressing and morbid if I did, but perhaps sometimes it is good to say these things.

 

It is SCARY living with Crohns. Maybe not day to day – right now I am in remission, and that generally means that it has a minimal impact on my life (touch wood). But it does mean I have to make quick trips to the bathroom – I refuse to put myself in a situation where I don’t know where one is. It doesn’t have to be a big deal, but wherever I go, I like to know there is a loo nearby! Also, I get very tired quite a lot – not necessarily after doing anything, but just being worn out. Sometimes this is just tiredness,sometimes it is fatigue, and they ARE different things. But generally, crohns is okay right now in my daily life, it just means taking a few tablets for me at the moment, and the odd hospital trip, but daily, it doesn’t impact me much more than that at the moment.

Crohns is scary. Because I have been there. I have been bent over double in pain, throwing up, unable to eat, crying out because I literally cant hold in how much it hurts. I have been unable to walk, and to dress myself after my operation, I have lost a huge amount of weight, I have been very sick. And it is terrifying to know that that came from within me, and that it could happen again. And that although I am doing everything I can to prevent it, and stop it, that ultimately I don’t have a say in that. It just might happen.

And that’s probably the second scariest bit, not just the potential pain that I know comes with it. But the fact that it might happen, but it might not. That it might start tomorrow, or in a year, or 5, or 35. I have no bloody clue. It could be fine and one day not be, and I would have no warning or no knowledge or no control over that happening. I wouldn’t be able to stop it. It may be bad or it may not be, but either way I will have no idea when it is about to happen and how bad it is about to be. And that, subconsciously I think, brings a lot of uncertainty to my life. It is scary that I could get a job, settle in and in 2 years be bought back down to nothing, because there is no way I could carry on with a job in the state that I was previously in, no way at all. I don’t think about that very often, but it is a thought that I have had, and realistically need to have, but that is terrifying.

The way I think of it is a little monster in my body, he may be hibernating now, and he may stay that way forever, but probably not. He will probably wake up again, and I have no control over when that is , or how bad it is, or how long it will last. Nothing. No say. This little creature (  I know it isn’t really, but that’s how it feels. A part of me I have no control over) can take over my life with  no say so from me, and the fact that is is MY body doing it kinda makes it worse, and so frustrating, and scary.

 

So, that is what it is like living with crohns. Or at least partly. It isn’t always like that, and it isn’t always so scary, and I don’t often think of it that way. But that’s realistic, and true. And terrifying.

 

I have now scared myself and need to stop writing before I spiral! Positive thoughts for now, and hope for a long and strong remission.

H x

A step towards a brighter future? Day 12, 2017


Okay, I know I missed two days, and they weren’t even a weekend- but they have been a bit of a rollercoaster, and I haven’t had my laptop with me and didn’t think that I could do them justice typing them out on my ever failing phone.

Today I went to therapy for the first time in years, maybe even a decade. I went when I was younger, but decided that the stresses and strains of my life currently are just a little too much to handle. I was so so nervous to go, and worried because it is expensive too, but I think for now it is an investment in myself that I deserve, and need, for a while at least. It was so nice to just talk, and have someone listen and not feel guilty for burdening them with my thoughts and stresses and worries, and I genuinely came out feeling a weight had been lifted- not because of any major breakthrough, but just being able to rant and talk and not feel like I am causing someone else stress because of it. And actually, when I listed everything that has happened to me in the last 18 months / 2 years, it really is a lot. And I really have done well to keep plodding on this far, and its no BLOODY WONDER that I am struggling now, I am carrying around a whole lot that I never give myself credit for.

 

So, today is a day of self appreciation I guess. She said something that made my insides smile, that I was a survivor, that I have done so well to plough on through everything I have; and you know what? SHES BLOODY RIGHT. So, well done me. Congratulations me. Hooray for H! Finally, I can see when I say it all outloud at once that yes, I bloody have done well to keep it together and keep going, and I am totally entitled to  need a bit of space to  let that all out. Now, I am not trying to elude to some big giant “issue” that has occurred, if you follow this blog you probably know most of what I mean, lots of little things added together, but there is more going on that is just a little too personal to write here, ( I know, shocker). I would write more about what was said, but I know that a few people who actually know me in the real world (HELLO FRIENDS) may read this, and that’s something that I want to be kept a bit more private, for now at least. There is no big dilemma, just the fact that I wanted some advice on how to cope with a few things, and coping strategies for when I cant. And its also so nice to be able to talk, and have someone listen, and just, free up your thoughts. I came out, got home and bawled for a while, and am now feeling like a tired and tearful zombie – but only because I haven’t said all that outloud at once before, and because I feel exposed and confused and sad, but also so free and relieved and happy, so I am excited. Now I just have to find a way to fund it!

 

One thing that was interesting, and maybe I should do a whole post on this tomorrow (or soon) is the way that Crohns came up, as something which causes stress in my life. I never really acknowledge to myself how scary crohns is. Because I know how debilitating it can be, and what a huge effect it can have on my life and on everyone around me – and that it can come back at any time, any day, for any length of time – and that level of uncertainty is very hard to deal with. And I didn’t realise quite how much it still impacted me, until she asked me more about it today. Normally I gloss over it, “oh I’m in remission now”, or “yes but I am just nervous about the doctors appointment” (which FYI I am, 25th January here I come…) but also ,maybe it does impact me more than I ever thought. hmm. something to ponder. Think maybe this is something that needs to be explored further on this blog, but not today. Too drained!

 

Be happy, Keep smiling, and Keep going!

H x

Gosh, life is confusing. Day 9,2017. 


I didn’t blog over the weekend – one day was because I forgot, another was an active choice, to spend my time enjoying the day rather than writing about it. 

This weekend I went home with my boyfriend to his parents – which was really lovely. They have a beautiful home, in a lovely place, and it’s always like a mini holiday being there. But once again I fought with my boyfriend, which is wearing me, and him, down. I love him very much, and I know he loves me, but we are just going through a clashing phase – and it’s no fun at all. We decided to put moving in together on hold – which I guess is sensible but I’m a little heartbroken over it. I hope that we can get back on track quickly, and move forward with it 🙂 
So today I found out I got through one stage of job application, although decided not to continue as don’t think the job was right for me- but it’s still reassuring. I also did some more applications, but nothing that exciting. I wish that I knew what my future held, because it’s all so unsure and scary right now.

Sometimes I really feel like I’m driven and have something to offer, and others, I can’t understand why people put up with ms. I’m negative, make mistakes, and generally am feeling like a A failure. So, so. Not sure where I was going with that train of thought, but I’m sure I’m not the only one who feels it. I just want cuddles and support and then feel bad for wanting it and being such a draining burden on everyone. Golly. 

Guess the only plan is chin up andfingers  crossed tomorrow goes better. 
Be happy

H X