8 ways to cope with some of the stresses of Crohns…


1. Cry  

Okay, technically this isn’t the best “coping” method, but it is something that I have done a lot. a lot. and it is something that I am sure most of us have done at times. It is probably a little depressing that it is the first thing that came to mind when I thought of this title, but it is a way to release some of the built up stress and emotion and theres nothing wrong with a little cry from time to time. Let it out, suck it up, move on. That’s the way forward.

2. Laugh

Literally the complete opposite to number 1, I know. But that’s good – you have to be able to laugh at both yourself and the situation you are in sometimes, because you have to remember; it wasn’t your fault! This disease isn’t something that is self inflicted, but something that you are unlucky enough to get. So, just try to smile through the times that are happy or funny or ridiculous, because you need that laughter in your life!

3. Surround yourself with friends and family who will stick by you through all the shit times

(Get it,…little crohns toilet humour there, I know, hilarious) But its so true- sometimes the only thing that used to get me through my bad days was knowing that there were people around me who cared, who I could whine to and cry to and who would put up with it all, get me a chocolate and send me back on my way. They are there for all th bad times and the hard times, but remember to share the good with them too. Don’t try to hide your pain or act normal if you aren’t feeling it, be honest with them and they will be able to help you all the more for it

4. Research and understand as much as you can

This will men that you understand things when the doctors are talking to you, and you can ask things of your own from research you have looked at online, or get peace of mind about some of the things you have been reading. It means that when eople (who I am sure are trying to be helpful) come up to you offering some ridiculous theory about how you could cure your crohns by simply eating something like a grapefruit a week, then you can tell them politely that they are wrong and you don’t panic yourself. It means you understand this disease and what it can do to you. It means you will understand what symptoms to look for. It means you can know what is happening to your body and ways to minimise the change. Ie means you are in control as you can be. So, do that homework.

5. Forget most of what you read in number 4

That sounds crazy, I know. But its true – most of what you will read will be horror stories, scare stories and these things can only add to the panic and paranoia you feel. Try to read it, understand it but then forget it, or put it to one side at least. Don’t let the internet scare you – remember if you have any big questions the doctors are always there for you.

6. Find a support group

This is one that I personally haven’t got around to in terms of joining a physical meeting group – so please don’t think I am too hypocritical, but it is something I would recommend if you can. I am struggling in terms of lack of access to transport, and alos timings and money to get there!Instead I am currently a member of the facebook group #Getyourbellyout and I recommend it – I have ever posted, but just seeing the community there for support and knowing I have the ability to write things there and get support and advice from others in a similar situation is enough for now. Also, I couldn’t count the number of times people have asked questions I have been thinking of, and its so reassuring! So, join something. Talk to people.

7. Get a diary

You need to be organised to fight this disease. You will have doctors appointments, blood tests, organising presscriptions, hospital appointments, follow ups, etc. You need to be on top of all of these and be sure to attend them all and get every check done necessary. Give yourself and your body the best chance.

8. Find some self confidence and keep a tight hold on it

You need to believe that you can beat this disease. You need to not let it get you down. You need to do all the above steps, and anything else that helps you to keep your e head up and keep above the water. This disease can be beaten and you can stop it controlling your life, just control it first. Keep belief that you can get through it even when you are in your darkest days.

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Get it out…..your belly I mean…


#GYBO

I am sure a lot of you might have seen or heard of this campaign – especially if you are a fellow sufferer. And I know I have mentioned it before, but just thought I would drop another quick line about it. (sorry, second post of the day – promise this one will be short 😉   ) I have joined the facebook group, along with about 2500 others who are either affected or live with those affected or the like. I am yet to post on the wall, for several reasons; but every day try to keep roughly up to date with the stories, comments, jokes, pictures, videos and sometimes cries for help or advice that are appearing there every day.

As such a large group there are of course troubles, there are sometimes little virtual skirmishes when people leave or have disagreeing views – but this is only to be expected, in the real world if you put 2500 people in a room and asked them to discuss a topic so close to their heart there would always be disagreements! I like this group, because it gives a (hopefully) safe place for people to vent, chat, meet and support each other who are all going through similar hardships. I like the fact that all the grisly details are mentioned and nobody bats an eyelid, we have all been there. I like the fact that people meet and go and support each other. I like the fact that people talk about totally unrelated topics – there is a lot more to each of us than simply being a sufferer.

If you are suffering from Crohns, IBD, or UC it might be an idea to check it out (:

H x

#getyourbellyout


#getyourbellyoutfinal

I know I have posted about this already, but just wanted you to know – I did it. I made the jump. I posted this on my social media sites – facebook and instagram are now up to date 😉 it was a big decision for me to put it onto facebook, now everybody knows. I don’t want judgements, or pity; I don’t want sympathy or revulsion – I just want to spread awareness. I don’t expect any big revolution to come from it, I know all that will happen is a few likes or comments. But to me, its one of the biggest steps I have taken. Its out there now, lets embrace it.

H x

PS – it has already got a comment from a girl I used to be in halls with saying how she suffers from IBD too, and that thank you for pointing it out and how she never knew etc, I guess there are people everywhere going through the same thing, but we just need to put it out there loud and proud until everyone does it. I always felt so isolated embarrassed and alone – but seeing all these other people gave me the push to do it. I hope that I can push others too as well !

Yes, this is the way forward


http://www.dailymail.co.uk/femail/article-2715459/Get-belly-Women-colostomy-bags-scars-proudly-bare-stomachs-latest-internet-photo-sharing-craze.html

this makes me so proud! All these people grouping together to try to raise awareness for something which is affecting so many of us! It has always bothered me that so many people dismiss Crohns, or don’t know about it and its affects- but finally people are coming together to raise awareness. It could well be a powerful movement driving both financial and social interest into the topic.

Having said that, not many people (aside from my close friends and family) know about my crohns – and the battle I have had to face. Partly because how do you bring that up in conversation, but also because (ashamedly) I can find it slightly embarrassing..and I am ashamed to admit that! I just don’t want the sympathy, and the explanations that follow or anyone to treat me different. THe people that I needed around me before I had, I had the support and the love to get me through it and I didn’t think that I needed to make it public in order to get that support or general interest. But how can I approve of this movement without actually physical supporting it? I cant. So I need to stop being a hypocrite and get involved. I am okay around my friends, I don’t hide my scar it doesn’t bother me anymore – so I need to suck it up and get over it, and move on, lets raise awareness and make a difference!

so…

#getyourbellyout

#getyourbellyout1

Hx