I am sure a lot of you might have seen or heard of this campaign – especially if you are a fellow sufferer. And I know I have mentioned it before, but just thought I would drop another quick line about it. (sorry, second post of the day – promise this one will be short 😉 ) I have joined the facebook group, along with about 2500 others who are either affected or live with those affected or the like. I am yet to post on the wall, for several reasons; but every day try to keep roughly up to date with the stories, comments, jokes, pictures, videos and sometimes cries for help or advice that are appearing there every day.
As such a large group there are of course troubles, there are sometimes little virtual skirmishes when people leave or have disagreeing views – but this is only to be expected, in the real world if you put 2500 people in a room and asked them to discuss a topic so close to their heart there would always be disagreements! I like this group, because it gives a (hopefully) safe place for people to vent, chat, meet and support each other who are all going through similar hardships. I like the fact that all the grisly details are mentioned and nobody bats an eyelid, we have all been there. I like the fact that people meet and go and support each other. I like the fact that people talk about totally unrelated topics – there is a lot more to each of us than simply being a sufferer.
If you are suffering from Crohns, IBD, or UC it might be an idea to check it out (: