3 ways I have succeeded despite Crohns…


  1. I am doing my masters.

This is something I didn’t think would be possible through the mid-point of my second year at Undergraduate. I couldn’t walk, I couldn’t eat, I couldn’t function on my own and totally relied on my friends to support me.  I was a walking, talking crohns-monster, and I am so thankful that through a combination of medication, operations, and love and support from my family and friends, that I have been able to emerge out the other side all the stronger for it. I am working hard, yes I am only in uni 3 days a week, but more because I can’t afford the train tickets than anything else! Yes, I am napping most days when I can. Yes, I am PILING on the weight because I am snacking more than ever just to get energy. Yes, I cry and feel defeated when it all gets too much, BUT it isn’t stopping me. I cant wait to hand in my dissertation, to crack on with the job hunt, and to walk down the dissertation aisle for the second time, head held high with my family around me, just to prove that I could. Coz Crohns ain’t stopping me.

 

2. I have a long-term boyfriend, and am managing semi-successfully

I know that doesn’t seem like it has anything to do with crohns for some of you, but that, probably, is because you don’t quite understand how it affects every single aspect of my life.  It affects my self esteem a lot, I think more than I realised. I don’t think I am good enough for him, I think he can do better, I get scared he will be bored of my medicine, and fatigue and general bad-days. I get worried he will get sick of my moaning. I fear he will out-grow me, and move onto someone less broken. But, so far, he hasn’t. And I pray to every god, or shooting star or lucky coin that he won’t, because as of right now he keeps me motivated and happy, and I couldn’t imagine my life without him. Thank you for being my best friend, my rock and my saviour 🙂

 

3. I am living a normal, ish, life

I have had quite a lot of stress in my life recently – my dad and stepmum split up, my boyfriend is moving out of his home into a new one, and I have realised my career prospects sseem pretty much 0. And yes, I have cried, and panicked, and hidden under the duvet to escape reality. But I made it out, I pulled the covers back and I am going on. I see my friends, I see my boyfriend, I see my family, I do my work, I plan events, I do everything I want to do (almost!). There are many things holding me back right now – job availability, money, etc, but my illness isn’t one of them. HELLS NO. On a trip with uni this weekend I told 2 people on my course about crohns – the first ones at this uni to know; and that had had no idea! And THAT is super exciting!

 

 

Maybe these things don’t sound like much, and maybe they aren’t. I hope this post wasn’t too self-indulgent. Maybe it is a way to boost my spirits before my impending colonscopy – number 4 at aged just 22, blooooody fantastic. Either way, everyone deserves a little self-congratulation once in a while. So, make sure you give yourself a pat on the back for all the good, and let the bad slide every now and again, cut yourself a break.

 

Be happy, be positive and keep fighting onwards,

H x

A little update from a very tired someone


Ciao amigos,

 

I went down to Southampton for another check up with my specialist- involved waking up at 6.15, driving for 2 hours and then a 15 minute chat before another repeat; in total I was out the house nearly 5 hours and its completely wiped me out for the rest of the day!

He in essence said:

– CArry on with both Humira and Aza because although I probably only need one, because signs came back so quickly both is advisable

-Stay on them both until at least the end of my masters, to try and stop any disruptions affecting my work

-If the tiredness gets worse it may be due to things like “the part of me that got removed is meant to soak up and re-cycle bile but because its AWOL there may be excess bile which could lead to some of my discomfort and the grumbling noises” so this could be treated

– Get blood tests every 3 months for check up and monitoring

-Going to transfer doctors to one right by my uni so wait to hear from them (Unlikely that’s going to happen any time soon, lets be honest!) which is exciting but im worried to leave him behind, he is the best doctor I have ever had!

-Go see the dentist with regards to my teeth / gums which keep bleeding 😦

 

 

Anyway, I am not zoned in enough to type anything else. I am feeling a little sorry for myself, tired and a bit fed up (whats new?!) so I will stop now rather than fill this post with moaning!

 

be Happy

H x

 

Try and keep calm when I tell you…


I have reached…

100 followers

THANK YOU THANK YOU THANK YOU

today has been a day of momentous posts for me – 100 followers and reflecting on my year of blogging (that actually fell 4 days ago!)

Thank you, to each and every one of you; this blog has been such an outlet to me, and to see the numbers slowly creeping up has been a spur on those days when I thought what was the point. I have that not every post has been entirely mind numbingly dull, and that some of you may have been able to relate to the odd random rambling.

Its only 1.37pm but my day has officially been made!

A very grateful, H xx