Okay, technically this isn’t the best “coping” method, but it is something that I have done a lot. a lot. and it is something that I am sure most of us have done at times. It is probably a little depressing that it is the first thing that came to mind when I thought of this title, but it is a way to release some of the built up stress and emotion and theres nothing wrong with a little cry from time to time. Let it out, suck it up, move on. That’s the way forward.
Literally the complete opposite to number 1, I know. But that’s good – you have to be able to laugh at both yourself and the situation you are in sometimes, because you have to remember; it wasn’t your fault! This disease isn’t something that is self inflicted, but something that you are unlucky enough to get. So, just try to smile through the times that are happy or funny or ridiculous, because you need that laughter in your life!
3. Surround yourself with friends and family who will stick by you through all the shit times
(Get it,…little crohns toilet humour there, I know, hilarious) But its so true- sometimes the only thing that used to get me through my bad days was knowing that there were people around me who cared, who I could whine to and cry to and who would put up with it all, get me a chocolate and send me back on my way. They are there for all th bad times and the hard times, but remember to share the good with them too. Don’t try to hide your pain or act normal if you aren’t feeling it, be honest with them and they will be able to help you all the more for it
4. Research and understand as much as you can
This will men that you understand things when the doctors are talking to you, and you can ask things of your own from research you have looked at online, or get peace of mind about some of the things you have been reading. It means that when eople (who I am sure are trying to be helpful) come up to you offering some ridiculous theory about how you could cure your crohns by simply eating something like a grapefruit a week, then you can tell them politely that they are wrong and you don’t panic yourself. It means you understand this disease and what it can do to you. It means you will understand what symptoms to look for. It means you can know what is happening to your body and ways to minimise the change. Ie means you are in control as you can be. So, do that homework.
5. Forget most of what you read in number 4
That sounds crazy, I know. But its true – most of what you will read will be horror stories, scare stories and these things can only add to the panic and paranoia you feel. Try to read it, understand it but then forget it, or put it to one side at least. Don’t let the internet scare you – remember if you have any big questions the doctors are always there for you.
6. Find a support group
This is one that I personally haven’t got around to in terms of joining a physical meeting group – so please don’t think I am too hypocritical, but it is something I would recommend if you can. I am struggling in terms of lack of access to transport, and alos timings and money to get there!Instead I am currently a member of the facebook group #Getyourbellyout and I recommend it – I have ever posted, but just seeing the community there for support and knowing I have the ability to write things there and get support and advice from others in a similar situation is enough for now. Also, I couldn’t count the number of times people have asked questions I have been thinking of, and its so reassuring! So, join something. Talk to people.
7. Get a diary
You need to be organised to fight this disease. You will have doctors appointments, blood tests, organising presscriptions, hospital appointments, follow ups, etc. You need to be on top of all of these and be sure to attend them all and get every check done necessary. Give yourself and your body the best chance.
8. Find some self confidence and keep a tight hold on it
You need to believe that you can beat this disease. You need to not let it get you down. You need to do all the above steps, and anything else that helps you to keep your e head up and keep above the water. This disease can be beaten and you can stop it controlling your life, just control it first. Keep belief that you can get through it even when you are in your darkest days.