New Years Resolutions?


New Years Resolutions?

I don’t often make any New Years Resolutions…they are the usual “go to the gym” “be healthy” “pass my exams”… and this year it wasn’t until I was reading around on wordpress about all the resolutions everyone else has made that I decided to make some myself…yes I am 3 days late but SHH…lets ignore that 😉

I spent a chilled out New Years Eve with my auntie and almost-uncle (her boyfriend of over 10 years), due to just getting out of hospital I wasn’t up for much but we just ate some dinner, played a board game and watched a film then some of the new years programs – nothing mind blowing but nice, safe, relaxed and easy. Just what I needed! At the time all I was thinking about was wishing that 2014 would bring me better health than 2013, and that the only way was upwards; but I think in retrospect a resolution has to be something that we can influence, something we can do to make a positive difference to our own lives, and my Crohns is actually something I have very little control over. It is all very well wishing and hoping that this year brings me some relief from the disease, and I will do so until I am blue in the face- but realistically there is a limited amount of control I have. So, I need to make some other resolutions that I can keep, and can motivate myself to do. So here they are:

– I aim to continue to be consistent and thorough in beating Crohns in whatever way I can, be it taking all the medicine regurlarly, making all the blood tests, and general organisational skills

– I aim to not let Crohns get me down any more. If I am having a bad day then fine, wallow, get it out my system; but I will not lose sight of all the positives that I have in my life, and I will focus on getting back into my routine and being happy. Crohns will not bring me down!

– I will try to keep this blog up and active, and aim to increase the numbers of followers, readers and commenters – the more the merrier, and not only do I feel like I can spread awareness, but it makes me more positive and gives me a focus.

– I will try to raise money for Crohns disease research, heaven knows we need more awareness, support and money placed into researching the causes and solutions.

– Pass my exams, and my coursework and do not get demotivated, keep working through it! Find a topic for my dissertation!

– maybe most importantly of all? appreciate the friends and family I have around me, and work to keep all those relations as they are, or improve them. Crohns doesn’t define me, it is simply one small part of me – and I do not want to let it take over the rest of me. It can stay in its little box whilst I get on with my life.

Im not sure if they are practical, or if they are what some people would consider “real” resolutions, but for me they are a lot, they are enough, they are good to aim for. This post has turned out a bit… I don’t know what the word is, but a bit..pompous? a bit too “I am going to aim perfection I can achieve anything if I believe” which I know as well as the next person just isn’t true. Sometimes though, on a good day, you need to aim high and far, in an attempt to keep your chin above the water, and give yourself some positive aims for the future, and that’s just what I have done 🙂

Hope you guys all had a lovely New Years, and are looking forward to a positive 2014!

H x

Recovery Time


Turns out having surgery to remove part of your insides and getting stitched back together again is something you don’t bounce back from all that quickly..

From all the talk before hand about needing weeks to recover back to 100%, and having to miss my university exams in January and the deadlines for coursework that I have – I never really appreciated just how much it would affect my everyday life, I know, stupid, I had buried my head in the proverbial sand in an attempt to ignore the changes that were approaching in my life. After the operation I was in a very weak state, only what was to be expected in retrospect. As I described in my last post, https://livingmylifewithcrohns.wordpress.com/2013/12/30/the-operation-with-a-capital-o/, when I woke up I was hooked up to several different tubes running off into some scary looking machines; but at the time I was in too much of a morphine induced haze to care. I think in summary of the entire procedure I would say im surprised at how little the actual wound hurt me, but shocked at other issues (such as a sharp pain in my shoulders, that was apparently caused by the air pumped into me during the keyhole surgery which had not yet escaped) and how they affected me. In all honesty it was a little bit terrifying, I cannot remember having so little control over myself – an inability to even sit up and hold my own cup of water for the first day or so. Not something I want to repeat. I was lucky enough to have my parents stoically by my side doing everything from holding my hand constantly for the 5 hours they stayed, to sponging my mouth with water when I couldn’t drink, and sitting in a silent room bored watching TV whilst I slept – I don’t think I will ever have enough words to say thank you.

Anyway, this is due to be a general post about my recovery and the related activities- I am pleased to report that as of today (tomorrow will be two weeks since the surgery, and one week of being at home) I am feeling a lot more like a human being! I am managing to wear nice normal clothes again (a new dress from Christmas yay, with tights rolled right down so as not to press on my stomach) and managed to get driven into town to hobble to a coffee shop to chat with my friends; all of whom are sadly going back to university this week. Its official, I missed pretty much my entire Christmas break being dependent on my parents or in hospital and unable to leave the house, I am truly not impressed. Aside from that the eating is going really well, and feeling a lot more independent and happy that I may actually get my life back – something which seems a long way off on Christmas morning in a hospital bed! The day after I was discharged I was advised to have a bath to help remove the dressings and as a relax, which I duly did (do love a good bath!) and the wound started to bleed- HELP! It was only droplets at a time, but pretty steady and after no sign of it stopping we were advised to go to A and E. It turns out that they reassured me it was nothing but some “healthy bleeding” as the muscles etc had been cut through, and it wasn’t infected. They were all busy admiring my wound and saying what a beautiful scar it will turn out to be- I think you have to be a nurse to see it, I hate it! Aside from that, and 5 days on it is still bleeding a little bit, I have to have a foam plaster/ dressing on it all the time to stop it leaking onto my clothes, but I am hoping it is part of the healing process.

I think, and I rarely speak about myself like this, but I think a bit of self-congratulating is in order, both mentaly and physically. Well done body, you have taken less than 14 days (yes with some medicinal help) to get back into a semi-working order, something that has allowed me to be a person again not just a bundle of clothes unable to do anything for themselves. I am impressed and proud with how well I can walk – when I went to A and E when I got back, about the bleeding, they couldn’t believe how well I moved and that was nearly 6 days ago! yes, its slow walking, yes I cant walk far or for long, but I CAN walk. One week ago my biggest achievement was making it shuffling round the ward to the lift and down into the main entrance of the hospital, and now I am managing to function normally enough to get into town without attracting too much attention and to get around my three storied house all okay. GO BODY. Aside from that, I really don’t think I moaned too much about it all – I did let it get to me, and I am feeling the emotional strain from the operation and everything I missed; but I think that I coped well and have accepted what is happening as a force of nature and something this has to happen, no point crying about it. In the spirit of this paragraph I have to be honest, in the dark depths of my worst night in hospital (I think the Monday night?) I texted my parents asking them in the most ratinoal way possible to break into the hospital give me painkillers and smuggle me home because I was dying alone in the hospital and I had never been so miserable. Potentially a bit cruel on my parents, as I knew at the time they would have to say no, and then I got angry at their lack of care – how dare they not break me out?! Aside from that blip, I think I coped well and I got on with it, and still am so now. Even as all my friends head back to uni, and the partying, and the socialising, I am stuck here at home – but I am determined to make the most of it, enjoy the home cooked food and the family support.

I don’t feel the need to go into the details of all of my recovery – it would read as a boring and elongated medical diary to everyone out there; and I am hoping that more people will follow the blog, rather than bore people senseless! I had the catheter in for about 4 days, and when it was removed it was pretty scary – I suddenly felt like I wouldn’t be able to cope with controlling my own bladder; and although I was fine it reminded me just how fragile everything was, and how much I used to take basic bodily functions for granted. I had the cannulas switched to just one in my other hand as they became very sore, and slowly as the morphine usage reduced I had that removed too – I think on the Tuesday? I struggled quite a lot with sickness, but slowly that decreased as my water intake upped and I began to eat. It took me about 3 days of just on yoghurts, jellies and soups before I mangaged to eat without being sick – and I am talking about 3 or 4 mouthfuls as a meal, nothing really. On Christmas day my big meal and treat was a chocolate mousse, of which I managed to eat half – wild child! I had to keep forcing myself to eat little and often, and to go on walks around the ward which I tried to do at least twice a day, going further each time. By the point of leaving the hospital I managed to be able to walk for a reasonable distance, and could eat small mouthfuls of “normal” food without feeling sick. As of today I am pleased to report that (touch wood) the progress is constantly upwards, slowly but surely and I am determined to build myself back up as soon as I can.

I am sorry for the long and rambling posts. When I started this blog it was a way for me to track the physical and emotional challenges I am facing; in an attempt to increase awareness about Crohns and to come in contact with others in similar situations. Never did I expect that within the month so much would happen to me, and so many changes would occur, or that I would lose 15cm of my insides! Please, comment below or message me, I would love to have some feedback on the blog or on anything you guys are interested in; or general interest in terms of others experiences.

Keep Smiling, and a happy new year to you all!

H x

Welcome to my world…


So,  my first post… exciting!

I’m not really sure how to write this in a way that doesn’t sound either massively clichĂ© or boring, but I will give it my best shot!

The reason I am creating this blog is because yesterday I had a really shit day, and I thought, sod it, do something for a change to make yourself feel better- and this is what I decided to do. The reason I was feeling so bad was my Crohn’s disease – something you will hear my rabbiting on about in the future I’m sure!

Instead of me trying to regurgitate everything the doctors have told me, here’s a basic summary of Crohn’s:  http://crohns.nutricia.co.uk/crohns_disease/what-is-crohnss-disease-cd

And a little bit about me:

I am 20 years old and am studying archaeology at university, just finishing my first term of my second year – starting to feel the stress! I love my course and the people I live with are my best friends, and am super close to my family who support me in everything I do. I hate writing about my Crohns as part of one of the things that defines me, but I guess I have to accept that it is part of what makes me me, and in some ways it makes me a better person. I was diagnosed last year after several months of doctors thinking it was different things, and since then have been on a number of different medicines, steroids and the like. I am currently on Azathriaprine (sorry my spelling is awful!) and just came off the steroid Prednisolene a few days ago. So far it is having little effect and I am feeling worse then ever both physically and mentally, so my consultant is considering  a surgery in the early months of next year – scary

But, this blog isn’t just a way for me to rant about my illness, its meant to document my sad days like yesterday, my frustrations and struggles, but also my triumphs – for I am hoping to have a few of these along the way! I hope it lets other people relate to me who are in a similar situation, but also that it raises awareness for Crohns, which I feel is like an invisible and isolating condition to have.

H x