Thank you, I needed this one


Hi all, A bit more of a positive post today, albeit a random one. As you may remember I had 4 days off work last week due to having a throat infection, and being on humira and trying to sort out hospital appointments and blood tests etc. Nothing funn! Anyway, back at work now and…

I need a whole new cutlery set of spoons..


...in reference to the spoon theory and chronic diseases. Just called in to tell work I won't be in yet again tomorrow and they want a meeting on Monday to discuss my illness. Understandably. But how do I tell them it all? How do I make them understand? Aside from fatigue and some odd cramping…

decisions are not my friend…


Hi again, I know I only posted a pretty miserable post yesterday, and I am sure the last thing you want to hear about is all the same crap again...but here it is. sorry. (promise to try to be a little more upbeat next time!) So a review of my current situation: I am at home,…

I’m really struggling. Its, unfair.


I cant remember when I last posted, or what it was about - and so I apologise for any long gaps/ random jumps between posts. This weekend my boyfriend got back from his 3 week trip around America, and it was soo lovely to see him and spend the weekend with him. I took Thursday…

My head, it hurts.


such bad headaches, such bad exhaustion. I really can't cope. My head is hurting so badly and I think it's a side effect of the humira. I want it to stop. Ouch. So dizzy and in pain and meant to start a new job on Monday. Fuck. 

Officially got myself a job today…


...at a company I was excited about, with awesome offices and such friendly people...but all I  can do is cry. Over the fact I'm scared, and everything's changing, and that my boyfriend isn't here to be excited for me or to talk to. I'm crying for 100 reasons I don't even know and it's making…

Feeling less human.


Just about to get a train to London for an interview, something I should be nervous and excited and happy about - instead I'm jus nothing. Nothing but tiredness. Serious tiredness. I have no energy and no energy to be happy either, it feels like I can't enjoy anything. I miss my boyfriend but surely…

So lonely. So sad.


Im so fed up of my life as it is at the moment. I am just so sad all of the time. Everyone is travelling, or working, my boyfriend is off on the trip of a lifetime and I am just sat at home all day everyday doing nothing apart from applying to jobs. I…